Patient Engagement
Section 9
Additional Resources
| NIA IMPACT Collaboratory Engaging Partners Team
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The Engaging Partners Team of the NIA IMPACT Collaboratory focuses on engaging community partners and other interested parties—including patients, care partners, clinicians, administrators, health care system leadership, community-based organizations, and public health entities—in all aspects of the development and conduct of PCTs among people living with dementia and their care partners. They share tool kits, events, and other resources that can support effective patient engagement activities. |
| CTTI Recommendations: Patient Group Engagement
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These recommendations from the Clinical Trials Transformation Initiative (CTTI) include best practices for effective engagement with patient groups in the context of clinical research. |
| Expansion of Expected Net Present Value Framework for Evaluating Patient Engagement Methods
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This resource from CTTI aims to communicate the potential resourcing benefit and contribute to understanding the value of patient engagement to clinical research. It aims to support financial and resource allocation decision-making with a customized expected net present value model, commonly used by pharmaceutical and
biotechnology companies. |
| Research Fundamentals: Preparing You to Successfully Contribute to Research
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This training package from the Patient-Centered Outcome Research Institute (PCORI) aims to explain patient-centered research and provide an overview of the research process to potential patient partners and other stakeholders. |
| Engagement Plan Template
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An engagement plan can facilitate a successfully engaged research project. The purpose of this template from PCORI is to guide the study team in operationalizing the engagement strategy that was described in the application and assist PCORI in documenting engagement activities to understand the influence and impact of engagement on the study outcomes. |
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