Data and Resource Sharing

Data and Resource Sharing

As part of the Collaboratory's commitment to sharing, all NIH Collaboratory Demonstration Projects are expected to share data and resources, such as protocols, consent documents, public use datasets, computable phenotypes, and analytic code. During the onboarding process, Demonstration Projects are given a Data and Resource Sharing Informational Document and an Onboarding Data and Resource Sharing Questionnaire to assist clinical investigators in developing data sharing plans. At closeout, Demonstration Projects are provided a Closeout Data and Resource Sharing Checklist and are expected to utilize this checklist to provide a final data share package. This page contains access to all elements of the Demonstration Projects' final data and resource sharing packages.
Study Tools
Protocols Ethics and Regulatory Documentation Computable Phenotypes and Analytic Code
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Datasets and Documentation
Data Collection Forms Datasets and Dictionaries Data Sharing Checklists
Additional materials forthcoming.
Study Design Paper Main Outcome Paper
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For a comprehensive list of project materials including additional resources, please visit each project's page.

Projects with final data sharing packages:

List of all projects


Data and Resource Sharing: Data and Resource Sharing. In: Rethinking Clinical Trials: A Living Textbook of Pragmatic Clinical Trials. Bethesda, MD: NIH Health Care Systems Research Collaboratory. Available at: Updated March 5, 2020.