Additional Resources

CHAPTER SECTIONS

Data Sharing and Embedded Research


Section 9


Additional Resources

Contributors

NIH Data Sharing Resources

National Institutes of Health (NIH) has services and platforms designed to help share, archive, and find products from research

Grand Rounds
September 27, 2019 Preparing for Clinical Trial Data Sharing and Re-use: The New Reality for Researchers (Rebecca Li, PhD, Frank Rockhold, PhD)
September 28, 2018 Assessing and Reducing Risk of Re-identification When Sharing Sensitive Research Datasets (Greg Simon, MD, MPH, Deven McGraw, JD, MPH, Khaled El Emam, PhD)
July 13, 2018 Clinical Trial Data Sharing: Perspectives from Participants and PCORI (Michelle M. Mello, JD, PhD, Steven Goodman, MD, MHS, PhD)
September 28, 2017 Assessing and reducing risk of re-identification when sharing sensitive research datasets (Gregory Simon, MD)

Podcasts
October 1, 2019 Preparing for Clinical Trial Data Sharing and Re-use: The New Reality for Researchers (Rebecca Li, PhD, Frank Rockhold, PhD)
July 17, 2018 Clinical Trial Participants’ Views of the Risks and Benefits of Data Sharing (Michelle Mello, JD, PhD)

News
August 13, 2018 JAMA Commentary Highlights the Value of Data Enclaves and Distributed Data Networks

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SECTIONS

CHAPTER SECTIONS

sections

  1. Introduction
  2. Data Sharing Concerns
  3. Data Sharing Solutions for Embedded Research
  4. Patient Perspectives on Data Sharing
  5. Data-sharing Policy at the NIH, Collaboratory, and HEAL
  6. Incentive Structure and Citations for Data Sets
  7. Preparing for Data Sharing
  8. Moving Forward
  9. Additional Resources
  10. FAQ


Version History

April 4, 2021: Added Grand Rounds and information on NIH data sharing repositories (changes made by K. Staman).

Published December 17, 2018

current section :

Additional Resources

  1. Introduction
  2. Data Sharing Concerns
  3. Data Sharing Solutions for Embedded Research
  4. Patient Perspectives on Data Sharing
  5. Data-sharing Policy at the NIH, Collaboratory, and HEAL
  6. Incentive Structure and Citations for Data Sets
  7. Preparing for Data Sharing
  8. Moving Forward
  9. Additional Resources
  10. FAQ

Citation:

Data Sharing and Embedded Research: Additional Resources. In: Rethinking Clinical Trials: A Living Textbook of Pragmatic Clinical Trials. Bethesda, MD: NIH Pragmatic Trials Collaboratory. Available at: https://rethinkingclinicaltrials.org/chapters/dissemination/data-share-top/additional-resources/. Updated September 25, 2025. DOI: 10.28929/104.