Consuelo H. Wilkins, MD, MSCI
Vice President for Health Equity, Vanderbilt University Medical Center
Executive Director, Meharry-Vanderbilt Alliance
Moving Beyond Return of Research Results to Return of Value
Health outcomes; Research results; Patient preferences; Value of information
- In returning value to research participants, results are shared with added context, are prioritized by each participant, include specific suggestions for relevant actions, and incorporate participant recommendations and preferences.
- Data captured for research purposes, including EHR data, vital signs, and genetic data, can be repurposed and reoriented for study participants.
- Participants are more likely to trust research if results are returned—and they are more likely to participate again.
We need to return study results that are informed by participants, and we need to design approaches for accessing and understanding results that participants will want to use.
We should think carefully about risk mitigation when returning research results for which there is a clear next step or action for the participant.
Read more about understanding what information is valued by research participants in a recent article by Dr. Wilkins and colleagues in Health Affairs.
#pctGR, @Collaboratory1, @drchwilkins, @vumchealth