Speakers
Jessica Mega, MD, MPH, Verily
Ken Mahaffey, MD, Stanford Medicine
Topic
Toward National Trauma Care Practice Change for PTSD and Comorbidity: Lessons Learned from the TSOS Pragmatic Trial
Keywords
Patient engagement; Patient-centric research; Outcomes research; Patient recruitment; Pragmatic clinical trial; Clinical research; Digital trials
Key Points
- A coalition to develop gold standard data, tools and technologies to create a holistic, aggregated view of health.
- Verily, Duke University School of Medicine, Stanford Medicine & Google will work together to acquire, organize & analyze multidimensional types of data.
- Health-related data will be collected via in-person visits, mobile apps, deep molecular profiling, sensors and wearables.
- Project Baseline will engage participants not as patients but as partners in planning and conducting the research.
Discussion Themes
Since the diagnostic testing will include incidental findings, who will be financially responsible for the downstream utilization?
Is there monetary compensation (how much) or other forms (ie devices to keep, services, credits, etc)?
What is the plan to encourage diversity in subjects, to make sure it’s not just a lot of young, well-educated white people?
Low SES and underserved minority persons are highest priority for reducing population risk and reducing health disparities. How can you reach these populations?
What is the plan for intellectual property that will be generated?
For More Information
Read more about Project Baseline at https://www.projectbaseline.com/. You can also watch the Overview Video on YouTube: https://youtu.be/ufOORB6ZNaA.
Tags
#pctGR, #ProjectBaseline, #PatientEngagement
@PCTGrandRounds, @Collaboratory1