Steering Committee Meeting
April 20-21, 2015
Bethesda, MD
Main Purpose
To celebrate the progress of the Collaboratory, hear updates from the Core Working Groups and Committees, plan for the implementation phase for the Multiple Chronic Conditions UH2s, hear updates and lessons learned from the UH3s, and discuss sustainability of the Collaboratory and the generalizable knowledge learned over these 3 years.
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View the agenda (PDF)
Monday, April 20, 2015
Welcome and Opening Remarks
Barry Coller, MD, Josephine Briggs, MD, and Lesley Curtis, PhD
PCORnet Update (PDF)
Rachael Fleurence, PhD
DRN Network Querying Capabilities/Investigator and NIH Initiative Use of the DRN (PDF)
Lesley Curtis, PhD, and Jeffrey Brown, PhD
Panel Discussion With Core Groups (PDF)
Moderator: Kevin Weinfurt, PhD
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Biostatistics and Study Design
Liz DeLong, PhD
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Phenotype, Data Standards, and Data Quality (PDF)
Ed Hammond, PhD, and Rachel Richesson, PhD, MPH
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Patient-Reported Outcomes (PDF)
Kevin Weinfurt, PhD
Panel Discussion With Core Groups
Moderator: Adrian Hernandez, MD, MHS
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Stakeholder Engagement
Sean Tunis, PhD, MSc
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Health Care Systems Interactions (PDF)
Eric Larson, MD, MPH
Discussion of Regulatory/Ethics Core Work Group Manuscripts
Moderators: Jeremy Sugarman, MD, PhD, and Kevin Weinfurt, PhD
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Privacy Paper and Q&A
Deven McGraw, JD, MPH, LLM
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Minimal Risk Paper and Q&A
John Lantos, MD
Panel Discussion From the NIH Bioethics Supplements
Moderator: Wendy Weber, MD, PhD, MPH
Jeremy Sugarman, PhD, MPH, Kevin Weinfurt, PhD, Susan Huang, MD, and Laura Dember, MD
IRB of Record (PDF)
Petra Kaufmann, MD, MSc
Breakout Sessions
Concurrent group discussions on several topics: biostatistics, regulatory/ethics, communication dissemination, data sharing, lessons learned, and project best practices
Closing Remarks
Barry Coller, MD, Josephine Briggs, MD, and Lesley Curtis, PhD
Reception
Tuesday, April 21, 2015
Welcome and Opening Remarks
Barry Coller, MD, Josephine Briggs, MD, and Lesley Curtis, PhD
Updates From the Multiple Chronic Conditions (MCC) UH2 NIH Collaboratory Trials
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A Policy-Relevant U.S. Trauma Care System Pragmatic Trial for PTSD and Comorbidity (Trauma Survivors Outcomes and Support [TSOS]) (PDF)
Douglas Zatzick, MD
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Pragmatic Trial of Video Education in Nursing Homes (PROVEN) (PDF)
Susan Mitchell, MD, MPH
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Improving Chronic Disease Management With Pieces (ICD-Pieces™) (PDF)
Miguel Vazquez, MD
Promoting Diversity in Health-Related Research (PDF)
Monique Anderson, MD
Lessons Learned From UH3 NIH Collaboratory Trials
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Time to Reduce Mortality in ESRD (TiME) (PDF)
Laura Dember, MD -
Collaborative Care for Chronic Pain in Primary Care (PPACT) (PDF)
Lynn DeBar, PhD, MPH -
Strategies and Opportunities to Stop Colorectal Cancer (STOP CRC) (PDF)
Gloria Coronado, PhD
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Active Bathing to Eliminate (ABATE) Infection (PDF)
Susan Huang, MD
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Pragmatic Trial of Lumbar Image Reporting With Epidemiology (LIRE) (PDF)
Jeffrey Jarvik, MD, MPH
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Pragmatic Trial of Population-Based Programs to Prevent Suicide Attempt (PDF)
Greg Simon, MD, MPH
The Living Textbook (PDF)
Jonathan McCall, MS
Compilation and Review of Milestones From the Collaboratory and Sustainability of the Collaboratory (PDF)
Adrian Hernandez, MD, MHS
Closing Remarks
Barry Coller, MD, Josephine Briggs, MD, and Lesley Curtis, PhD