Health Equity
Overview
Co-chairs:
Healthy People 2020 defines health equity as "the attainment of the highest level of health for all people. Achieving health equity requires valuing everyone equally with focused and ongoing societal efforts to address avoidable inequalities, historical and contemporary injustices, and the elimination of health and health care disparities.”
The Health Equity Core provides leadership and guidance that will help the NIH Pragmatic Trials Collaboratory, its trials and investigators, and ultimately the research community at-large, be more equitable in research. Their work includes supporting PCTs to address social and structural drivers of inequities, implement patient and community engagement strategies, promote the inclusion and mentorship of historically underrepresented scientists, and develop culturally and contextually aligned research and translation strategies that overcome bias and resonate with patients and communities.
Core goals:
- Develop guidance for pragmatic trials on how to integrate a health equity lens in PCTs, including considerations for enrollment, strategies for selecting outcomes, and tailored research methods that better suit the study population.
- Document barriers to the integration of a health equity lens in pragmatic research.
- Develop strategies and tools to facilitate a health equity lens in pragmatic trials.
Interview
During the NIH Pragmatic Trials Collaboratory 2022 Steering Committee meeting, Drs. Rosa Gonzalez-Guarda, Rachel Gold, and Karen A. Kehl discussed the importance of including diverse participants in pragmatic clinical trials.
Areas of Focus
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Address health inequities through research design.
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Offer guidance on how to ensure research questions are relevant to the people being served.
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Generate new knowledge on PCTs that contribute to health equity.
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Develop strategies to engage groups who are commonly excluded from trials conducted in health care systems.
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Help researchers learn how to partner with communities and lower-resourced clinical sites to ensure underrepresented and disproportionately affected populations are included in PCTs.
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Widely share new knowledge and resources for promoting diversity, equity, and inclusion in PCT leadership.
News & Interviews
- News_Health Equity Core Provides Reference for Equitable Language in Pragmatic Trials
March 28, 2024: Health Equity Core Provides Reference for Equitable Language in Pragmatic Trials
- News_A Year of New Insights From the NIH Pragmatic Trials Collaboratory
December 12, 2023: A Year of New Insights From the NIH Pragmatic Trials Collaboratory
- News_Program Leaders Reflect on Cross-Core Collaboration and Opportunities for the Future
August 14, 2023: Program Leaders Reflect on Cross-Core Collaboration and Opportunities for the Future
- News_NIH Pragmatic Trials Collaboratory Welcomes First Class of Fellows
July 17, 2023: NIH Pragmatic Trials Collaboratory Welcomes First Class of Fellows
- News_NIMHD Director Discusses Ways Researchers Can Help Reduce Health Disparities
June 26, 2023: NIMHD Director Discusses Ways Researchers Can Help Reduce Health Disparities
- News_Reflections on Health Equity in the Pragmatic Trials Landscape
June 27, 2023: Reflections on Health Equity in the Pragmatic Trials Landscape From the Annual Steering Committee Meeting
- News_Health Equity Core Leaders Share Insights From Annual Steering Committee Meeting
June 29, 2023: Health Equity Core Leaders Share Insights From Annual Steering Committee Meeting
- News_Report Shares Strategies for Addressing Bias and Lack of Generalizability of EHR Data
July 3, 2023: Report Shares Strategies for Addressing Bias and Lack of Generalizability of EHR Data
- News_NIH Collaboratory Begins 2023 With New Cores in Health Equity and Implementation Science
January 30, 2023: NIH Pragmatic Trials Collaboratory Begins 2023 With New Cores in Health Equity and Implementation Science
- News_NIH Pragmatic Trials Collaboratory Announces 2 New Core Working Groups
October 24, 2022: NIH Pragmatic Trials Collaboratory Announces 2 New Core Working Groups
Products and Publications
- Health Equity Terminology Cheat Sheet
Health Equity Terminology Cheat Sheet
- Boyd et al J Am Med Inform Assoc 2023
Potential bias and lack of generalizability in electronic health record data: reflections on health equity from the National Institutes of Health Pragmatic Trials Collaboratory
Presentations
- 2023 NIH Workshop_Panel 2_Gonzalez-Guarda
2023 NIH Workshop Panel 2: Gonzalez-Guarda
- SC-Mtg-2023-Day1-Harrington
Cherise Harrington Presentation 2023 Steering Committee Meeting
- SC-Mtg-2023-Day1-Gonzalez-Guarda
Rosa Gonzalez-Guarda Presentation 2023 Steering Committee Meeting
- SC-Mtg-2022-Day-1-Gonzalez-Guarda
Navigating the Challenges of Including Diverse Participants Panel at 2022 Steering Committee Meeting