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NIH Collaboratory
Living Textbook of
Pragmatic Clinical Trials

COVID-19 Resources

Access the latest information on COVID-19 for clinical researchers
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Rethinking Clinical Trials

A Living Textbook of Pragmatic Clinical Trials

  • Design
    • What is a Pragmatic Clinical Trial?
    • Decentralized Pragmatic Clinical Trials
    • Developing a Compelling Grant Application
    • Experimental Designs and Randomization Schemes
    • Endpoints and Outcomes
    • Analysis Plan
    • Using Electronic Health Record Data
    • Building Partnerships and Teams to Ensure a Successful Trial
    • Intervention Delivery and Complexity
    • Patient Engagement
  • Data, Tools & Conduct
    • Assessing Feasibility
    • Acquiring Real-World Data
    • Assessing Fitness-for-Use of Real-World Data
    • Study Startup
    • Participant Recruitment
    • Monitoring Intervention Fidelity and Adaptations
    • Patient-Reported Outcomes
    • Clinical Decision Support
    • Mobile Health
    • Electronic Health Records–Based Phenotyping
    • Navigating the Unknown
  • Dissemination & Implementation
    • Data Sharing and Embedded Research
    • Dissemination Approaches for Different Audiences
    • Implementation
    • End-of-Trial Decision-Making
  • Ethics & Regulatory
    • Privacy Considerations
    • Identifying Those Engaged in Research
    • Collateral Findings
    • Consent, Disclosure, and Non-Disclosure
    • Data and Safety Monitoring
    • Ethical Considerations of Data Sharing in Pragmatic Clinical Trials
    • Ethics for AI and ML
    • IRB Responsibilities and Procedures

Additional Resources

CHAPTER SECTIONS

ARCHIVED PAGE

Archived on November 26, 2025. Go to the latest version.

Dissemination Approaches For Different Stakeholders


Section 7


Additional Resources

Expand Contributors

Leah Tuzzio, MPH
David Chambers, DPhil
Ellen Tambor, MA
Jerry Suls, PhD
Beverly B. Green, MD, MPH
Susan Huang, MD, MPH
Kevin Weinfurt, PhD
Doug Zatzick, MD

Contributing Editors
Karen Staman, MS

Gina Uhlenbrauck, ELS
Liz Wing, MA

The National Library of Medicine (NLM) has services and platforms designed to help archive, share, and find products from research (Table). For more data sharing resources and platforms, see the Additional Resources the Data Sharing Solutions for Embedded Research sections of the Data Sharing and Embedded Research Chapter

 Resource  Description
National Library of Medicine Tools
NLM Health IT Landing Page Includes multiple resources:

  • CPT: COVID-19 CPT coding and guidance
  • LOINC: SARS-CoV-2 and COVID-19 Related LOINC Terms
  • RxNorm: COVID-19 Vaccines and Medications in RxNorm 
  • SNOMED CT: SNOMED CT COVID-19 Related Content
  • VSAC: COVID-19 Value Sets in VSAC
  • VSAC: Provisional Codes in Value Sets
Value Set Authority Center (VSAC) Platform for sharing value sets used in cohort definitions
PheKB A platform that enables access to validated phenotype definitions (“algorithms”), validation of existing phenotype algorithms on EHRs, collaboration on existing and new phenotype algorithms, and interaction with potential phenotype algorithm collaborators

 

National Information Center on Health Services Research & Health Care Technology (NICHSR) Includes databases relevant to Health Services Research
 

PubMed

Contains citations for biomedical literature
ClinicalTrials.gov A database of publicly and privately-funded clinical studies
Grants and Funding A central resource for Grants and funding information

Grand Rounds

Grand Rounds March 9, 2018 Communication and Dissemination in Learning Health Systems (Eric Larson, MD, MPH)
Grand Rounds September 29, 2018 Preprints: What, Why Not, and How (Harlan Krumholz, MD)
Podcast September 29, 2018
Preprints: What, Why Not, and How (Harlan Krumholz, MD)
Information on Finding Reputable Journals
  • Directory of Open Access Journals lists high quality, peer-reviewed, open-access journals.
  • The Principles of Transparency and Best Practices in Scholarly Publishing—developed by The World Association of Medical Editors (WAME) in collaboration with other professional associations—provides recommendations and best practices for medical journal editors.
  • Think Check Submit provides guidance for authors on choosing the best journal.
  • Statement on Article Publication Resulting from NIH Funded Research
Writing webinars
Writing for Clinical Research Discusses the structure and features of research articles, the writing process, submission and peer review, and the responsibilities of authorship.
 Authorship and conflict of interest 
The International Committee of Medical Journal Editors (ICJME) recommendations Criteria for authorship for peer review journals as well as author responsibilities for reporting conflicts of interest
Reporting and dissemination tools
PCORnet Best Practice Sharing Session Using Narratives to Promote Engagement: The MyPaTH Story Project. This session describes how the PaTH network has developed an archive of patient stories to support the development of people-centered research questions in PCORnet and facilitate patient engagement in patient-centered outcomes research.
PCORI’s Dissemination and Implementation Framework A dissemination and implementation (D&I) framework to facilitate strategic planning for sharing information and for putting new evidence into practice to speed change.
PCORI’s Dissemination and Implementation Toolkit A companion document to the D&I Framework that describes the core components of dissemination and implementation.
Aggregate Analysis of ClinicalTrial.gov (AACT) database The Clinical Trials Transformation Initiative (CTTI) created the Aggregate Analysis of ClinicalTrial.gov (AACT) database,  which is a publicly-accessible ClinicalTrials.gov dataset that can be used to analyze studies and characterize the current state of clinical trials, including at the individual specialty level.

The product list contains publications, information regarding the methodology leading to the creation of AACT, tips, and example analyses.

Previous Section

SECTIONS

CHAPTER SECTIONS

sections

  1. Introduction
  2. Reporting to the Scientific Community: General Considerations
  3. Case Study: Journal Reviews of NIH Collaboratory Trials
  4. ClinicalTrials.gov
  5. Dissemination to Patients
  6. Dissemination to Healthcare System Leaders
  7. Additional Resources


Version History

April 5, 2021: Added NLM resources (changes made by K. Staman).

December 11, 2018: Added resources as part of annual update (changes made by K. Staman).

Published August 25, 2017

current section :

Additional Resources

  1. Introduction
  2. Reporting to the Scientific Community: General Considerations
  3. Case Study: Journal Reviews of NIH Collaboratory Trials
  4. ClinicalTrials.gov
  5. Dissemination to Patients
  6. Dissemination to Healthcare System Leaders
  7. Additional Resources

Citation:

Tuzzio L, Chambers D, Tambor E, et al. Dissemination Approaches For Different Stakeholders: Additional Resources. In: Rethinking Clinical Trials: A Living Textbook of Pragmatic Clinical Trials. Bethesda, MD: NIH Pragmatic Trials Collaboratory. Available at: https://rethinkingclinicaltrials.org/chapters/dissemination/dissemination-different-stakeholders/resources/. Updated December 3, 2025. DOI: 10.28929/088.

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