August 25, 2017: Thoughts From the Phenotypes, Data Standards & Data Quality Core

 

Speaker

Rachel Richesson, PhD, MPH, Associate Professor, Duke University School of Nursing

Topic

Update and Thoughts From the Phenotypes, Data Standards, and Data Quality Core of the NIH HCS Research Collaboratory

Keywords

Pragmatic clinical trials; Phenotypes; Data Standards; Data Quality

Key Points

  • Population-level data essential to measure and report data quality so results can be appropriately interpreted
  • Key recommendations for researchers include asking questions based on the data available and creating an organizational culture and commitment to research as a core mission
  • PCT researchers should not try to change what is collected or how it is recorded, but identify how the collection or processing of clinical data can be improved to maximize the utility for research

For More Information

Read more about the Phenotypes, Data Standards, and Data Quality Core at http://www.rethinkingclinicaltrials.org/phenotypes-data-standards-and-data-quality

Tags
#pctGR, #HealthData
@PCTGrandRounds, @Collaboratory1